Efficient and secure acquisition of human health and genomic data

The company uses blockchain-based platform to build a marketplace for genomic and clinical data. It sequences participants’ genomes and then give users the agency to sell their personal data to researchers and pharmaceutical companies through a cryptocurrency. It also stores the participant’s genetic information in a blockchain based network.

Problem

Web design tools haven't evolved at the rate web design trends have been shifting. Are we seriously still spending hours learning to hand-code new design trends that will die out before we master them?

Approach

Web design is an ever trending field and after two long decades of waiting, we finally have the tools we hoped for to bring our designs to life on multiple devices. This next generation of web design tool should versatile and enable web designers to bring out the stroke of genius we've been suppressing for far too long.

Solution

Sparrow is one of a kind template that makes it easy for web designers and developers to create complex layouts. Sparrow provides a fully modular css class based workflow from start to finish fully loaded with reusable elements and bootstrap 4 support.

Company

Nebula Genomics

Longenesis

Status

In process

Tags
  • Healthcare research
  • HealthTech
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Problem statement

Companies are making money by using and selling health data of individuals without their permission. There is a need for privacy in highly sensitive DNA data.

Approach

The company offers a way to standardize, centralize, and acquire genomic data while simultaneously protecting user privacy. It uses blockchain technology and gives the individual complete control of his/her data. The individual can choose to keep the data private or can get rewarded for securely and anonymously sharing with medical researchers.

Technical details

If the individual decides to share their data, it is encrypted and analyzed by Intel Software Guide Extensions. The individuals retain the anonymity through cryptographic identifiers which won’t be matched to their identity. Also, the buyers will have to remain transparent so that the data owners know exactly who and how is their data being used. All the transactions are stored on the secure Nebula blockchain so there is a permanent record. The network is built on Blockstack technology and Nebula blockchain. Blockstack provides decentralized apps so that users can choose their own storage providers, like Dropbox, in order to store the data. All records are stored on the permanent Nebula blockchain. The company plans to keep currency with the Nebula network by using Nebula token as currency. The users will pay for genomic sequencing with Nebula tokens. Also, the data-buyers will use tokens to purchase this data. The data-buyers will get these tokens from Nebula Genomics for flat money. This will set up a cyclical system in which Nebula tokens will be used to both buy and sell data.

Health 2.0 conference, a HIMSS innovation company

Presented
References

https://blockchainhealthcarereview.com/nebula-genomics-blockchain-enabled-genomic-data-sharing/

https://www.himss.org/news/how-we-benefit-getting-our-genomes-sequenced

https://medium.com/@NebulaGenomics/nebula-genomics-at-health-2-0-d690fd41cd0a


This use case first appeared on Chain 76 Use Cases — a review of blockchain technology implementations and deployments in the pharma and healthcare sectors.